The chicken-and-egg problem
Ongoing brokerage is a line inside your Personal Resource Account. But at the start there is no approved budget, no line, and nothing to bill against — and yet somebody has to do several months of planning and writing before a budget can exist at all.
OPWDD resolves this by funding the start-up phase separately, with state funds. Start-up Support Broker services may be accessed once, with a lifetime funding limit of $2,400, for the work of creating an initial budget. The practical effect is that getting you started does not come out of the money meant to support you once you have started.
Two limits worth knowing now rather than later. It is a lifetime limit, not an annual one. And a second start-up brokerage expense is not available to someone who has already received self-directed services and is simply changing Fiscal Intermediary.
Two phases, one title
OPWDD describes two phases of broker service. Start-Up Support Brokerage is the design and completion of an approvable Self-Direction budget. Ongoing Support Brokerage is everything that keeps the approved budget working — principally maintaining the Circle of Support and managing the budget. They are frequently the same person, and they do not have to be.
Where brokerage is not available at all
HCBS Waiver Support Brokerage is not available to people living in settings that are not waiver-eligible: Intermediate Care Facilities, nursing homes, residential schools and developmental centres. Start-Up Brokerage is available to people seeking to move out of those settings into self-directed services in the community — which is precisely the situation in which families assume, wrongly, that they have no route in.
What has to be true before start-up begins
- OPWDD eligibility has been determined, and you have a Notice of Determination
- You are enrolled with a Care Coordination Organization and have a Care Manager
- You have told your Care Manager, explicitly, that you are choosing Self-Direction
- Your needs assessment is done, and a Personal Resource Account amount is known or in progress
- A Self-Direction Liaison has been assigned by your Regional Office
If any of those is missing you are not at start-up yet, you are still at the Front Door stage. Trying to run them in parallel is where most of the lost months come from. OPWDD's Front Door line is 1-866-946-9733.
What the start-up phase produces
A Circle of Support that actually meets
Not a list of names. The required members are the person, the broker and the Care Manager; the useful members are whoever knows the person well enough to disagree about what they need. See building a Circle of Support.
Person-centred planning that precedes the numbers
What a good week looks like, what the person is working toward, what has failed before and why. Done properly this takes several sessions. Done as a form-filling exercise it produces a budget that describes a stranger.
A first Self-Direction plan and budget
Every line justified against a valued outcome, with the arithmetic done and other funding sources checked first. See writing the plan and budget.
A Fiscal Intermediary selected
You choose the FI. Ask your broker which ones they work with easily, and ask other families which ones answer the phone.
Submission, and then questions
The Liaison reviews. Expect revisions. A first submission that comes back with queries is normal, not a failure.
How long it really takes
OPWDD's own expectation is that completing a Self-Direction budget is typically accomplished within six months of the approval of a Broker Agreement for Start-Up Brokerage and the issuance of a start-up broker approval letter. Note where that clock starts: at the agreement, not at your first phone call.
In practice it depends on how fast the planning work gets done and how clean the first submission is. It can run longer where the plan is complex or the regional office is backed up.
The one thing that shortens it
Come to the first planning session with your own material already written down: what a good day looks like, what support is needed and when, what you have tried, what you are worried about. Brokers spend weeks extracting this. Families who arrive with it save a month and get a better plan, because the plan ends up describing what you actually said rather than what was reconstructed from three interviews.
What to watch during start-up
- A budget that appears fully formed. If you did not recognise your family in the planning conversations, you will not recognise them in the budget.
- Silence from the Liaison. Ask your broker for the submission date and the status. Nothing is gained by not knowing.
- Staff recruitment starting too late. Fiscal Intermediary clearance takes time and includes fingerprinting. An approved budget with nobody hired is not support.
- The Life Plan not updated. Your Care Manager must ensure the Life Plan lists the self-directed services. If it does not, that is a problem waiting for your renewal.
Questions families actually ask
Is start-up brokerage really separate money?
Yes — state funds, with a lifetime limit of $2,400, accessed once, rather than coming out of the Personal Resource Account. To receive ongoing brokerage afterwards, the person must be enrolled into the HCBS Waiver Brokerage service.
Can my start-up broker be a different person from my ongoing broker?
Yes. Some brokers specialise in start-up and hand over once a budget is running. It is worth asking at the outset which one you are hiring, so a handover does not surprise you in month four.
What if start-up drags on for a year?
Find out where it is stuck, specifically: unfinished planning, an unsubmitted budget, or a queue at the Regional Office. Each has a different fix. Your Care Manager and your Self-Direction Liaison can both tell you which one it is, and a broker who cannot say is part of the problem.
Do I pick the Fiscal Intermediary or does the broker?
You do. Brokers will have preferences based on who is easy to work with, and those preferences are worth hearing, but the choice is yours and you can change it later.
Where this comes from
Written from the OPWDD source documents below and reviewed against them on 23 September 2026. OPWDD policy and figures change; confirm anything that affects a decision with your Care Manager or your DDRO Self-Direction Liaison before acting on it.
Keep reading
Not sure where you are in this process?
GRSCorp runs free sessions for New York families on OPWDD services, Self-Direction and what to ask for. We do not sell brokerage — we explain the system so you can choose well.
Talk to usOPWDD toolkit